Conversations With The Hobbit: Part 1

My Hobbit: i just wonder if there’s more ‘science’ than we think in scripture
Me: well, I’m pretty sure that scriptures/prophets weren’t all that concerned with science. That’s like asking an astronomer what he thinks about rotating crops: you know? It’s really not fair to expect them to be an expert in both fields, especially when that option really wasn’t available to them. They knew about sheep. They could tell you how to breed a good ewe. That’s about all the science they knew, but for their time, that was pretty damned important and yet, people always expect prophets to know more about science than scientists know about faith (or sheep).

Euthenasia for the deaf-blind

About the case of the deaf blind twins that had themselves put to death because they didn’t want to live with being both deaf and blind.  They were deaf and going blind at the time they decided that life just isn’t good enough if you can’t hear and see (and you thought AUDISM was bad? What do you call it when the deaf think it’s so horrible not to be able to SEE that you should just DIE?):

http://www.newser.com/story/160965/deaf-twins-going-blind-die-by-assisted-suicide.html

I wanted to tell you why this was an evil thing these brothers did.

My husband has Ushers Syndrome and has been deaf since he was six and living with a deteriorating vision for most of his life.  He still tells tales about ‘blind camp.’  That was when he could still actually see.  Now, we have a blog that chronicles our life together, the adventures of the deaf-blind and we try to focus on the positive: https://withclosedcaptions.wordpress.com.

There is no cure for Ushers Syndrome.  Sam is rapidly losing the little vision he has.  He is having a lot of problems accepting the fact–despite everything we tell him–that he still has value.  There is not a job he can do that is more valuable to us than working at home raising the kids, but he does other things for me, like help me edit my work and research, besides being my emotional recharge, my spiritual rock and my best friend.  Society doesn’t value a stay at home dad very much, and obviously, from the above story, it doesn’t even really value a deaf-blind person.

This double suicide didn’t just affect these two brothers.  No.  This affected my husband.  If the deaf people didn’t think they had a value if they went blind, how can anyone expect society to think they do?

Katherine Sebilius’ said “Some people live, some people die” as if there were no value to a life that didn’t fit in a box on a chart in some census file.  This is exactly the mindset that these deaf brothers understood.

Every time my husband goes through a bout of depression, we struggle to show him how much he means to us.  You know who we have to fight?  That influence from the government, the media, and now these two deafblind brothers who think being deaf and blind is too much to bear.  They even use the excuse that they don’t want to be a burden to their family.  What did their family say?  They waved goodbye and had a ‘rich conversation?’  Are you freaking kidding me??!!

F*** you for not fighting this tooth and nail so I and all of my friends who are deaf and might one day go blind didn’t have to fight it. Screw you for going down silently to that last sleep.  I hope those deafblind brothers spend as much time in hell as we spend struggling to keep my husband uplifted and positive. (even though I don’t really believe in “hell”)

You think these sorts of decisions don’t affect other people?  You think they only impact the disabled, or the chronically ill? Think again. It may cost me the best man I’ve ever known.  Friends and family say these two brothers were good men.  Take a look around you. Do you really think society can afford to lose a lot more good men?

As for me and my house…  We will fight tooth and nail to continue to support and uplift the sanctity of each life, no matter the disability.

The Valley Of The Sham – Guest Poem by My Hobbit

The Valley Of The Sham

I saw The Great and Secret Show
Lost in the Valley of the Damned
Got past the shame and saw the Sham
I loved the Demons, I loved the Whores
The Light of God shone through the Doors
Caught in a rabbit Trap I never made
My Soul transmuted beneath the shade
The Fire burns, it burns so well
I never knew your Heaven was my Hell.
+S

Miracles – guest Post by my Hobbit

In ASL, the sign for miracle is “wonderful happening.” The ASL sign manages to be much less problematic than the English word.

So Jesus rose from the dead? That’s a wonderful happening. Jesus walked on the water? That’s a wonderful happening too. You just got a job? Wonderful happening. Your wife had a baby? Wonderful happening! Your cat had kittens? Well that’s wonderful too, but I’m not sure that’s actually a happening. You got a cochlear implant? Hmmm… well, that’s your choice.

Okay, I guess sometimes the concept is problematic even in ASL.

http://www.azlyrics.com/lyrics/icpinsaneclownposse/miracles.html

–by Sam Campbell, aka Noelle’s Hobbit 🙂

Blinded by the light

Him: speaking of which, I tried to use that other flashlight, but you took it back. so I need a decent flashlight like that one. Like the other one you gave me
Me:  Well … it is my flashlight.  I don’t remember giving you a flashlight at all.
Him: yes, well
Me:I didn’t know you needed one
Him: yeah I have asked a few times for one like the other one I have. I can just use that one and not bother trying to remember to take it in my bag.
Me: I didn’t know you had one.  But I will get you another one soon
Him: k
Me: It’s just that I don’t normally go to the store, pass by the flashlights and think “Oh yeah! The blind man needs a flashlight! You know… so he can see in the dark… or something…” But I’ll put it on my shopping list 😛

Define Normal

The Hobbit and I went to go see the Hobbit movie in matching Hobbit T-Shirts at the Memorial City Mall in Houston on New Years Day.

When my Hobbit is using his cane, people get out of the way, which is kinda nice–by that, I mean it shows that people are still considerate when they understand the situation.  Someone (who wasn’t handicapped) was sitting in the handicapped seats right in the middle of the theater.  They got up when they saw us coming and moved into the normal seating.  I thought that was nice.

The trailers started, and since my Hobbit isn’t fully blind, but remembering he is fully deaf without his cochlear implant, he can sometimes read and understand the huge words that stream on the screen.  We were watching a Mini Cooper commercial:  – the end of this commercial says “Who wants to be normal?” – my Hobbit read that and said out loud: Me!

For me it was a moment of clarity.  I know that my Hobbit really hates when people admire him for his ability to endure his disabilities.  He thinks somehow they are feeling pity for him, instead of actually admiring his skills, albeit skills that are not ‘normal’ for most of us.  That is where the clarity came:  One man’s normal is another man’s extraordinary.

I love my Hobbit (obviously).  My life has been ‘not normal’ for several years now and I think it has improved vastly because of it.  I have learned a new language, my writing has improved, my adventures are almost daily, and I have a kingdom of my own filled with magic windows, Hobbits (at least one of my own), bogs of Eternal Stench (the kids room), and so much more.

I’m glad for not being normal.

But… then again… I’ve never thought of myself as normal.  Have you?

Good To See You!… Well… Not Really

My husband and I went shopping this morning for snacks and drinks to give to the ASL Missionaries when they come over and help with a project. We have the LDS Missionaries (specifically the ASL speaking ones) over a lot to help with things that the Hobbit is not able to do because of his vision loss.

So we are at Randalls, just finishing up our shopping trip, getting into the car with our goodies, when someone pulls up alongside us. He waves and I recognize him. I roll down the window and say “Hi!” He waves back and my husband asks who it is, because even though he’s only really a door’s length away from us, my Hobbit can’t see him. I tell my Hobbit that it’s Brother So and So from our Ward (he’s also our Home Teacher) My Hobbit brightens, turns and waves. “Hello!” he says. “We are just buying snacks for the missionaries!” We nod and small talk for a few moments and then it’s time to go so the Hobbit says “It’s good to see you!” and I start pulling away when he says: “Well, not really.”

It’s funny because even though he can’t see him, he’ll still use those idioms. What’s funnier is when we’re at home and I’m talking to him in ASL and he says he can’t hear me…

Ah, the life of a Hobbit.

Jedi Mind Tricks – Magiking Your Husband Away

Today my husband and I went on reconnaissance to Sam’s Club. We do this to refill the freezer and the emergency kits. Inevitably, the Hobbit needs to be fed–It’s way past second breakfast–so we usually pick up a hotdog combo. My hobbit was munching his grundage while we were shopping. It was just a small trip (under 200 dollars) but drinking 32 ounces of Dr. Pepper will make a hobbit need to find relief. He toddled off to use the hobbits room while I checked out. He just got back when my cashier was finishing up our purchase. I handed the Hobbit his Dr. Pepper cup and fingerspelled “refill” to him. He, of course, was happy to have another 32 ounces of liquid energy, so he went right off to refill his cup.

I heard “OH!” from my checker and turned to him. He laughed and said “That was funny.”

“What?” I asked.

“Your husband came up, you waved your hand and he totally turned right back around like you had waved him off.”

“Oh, he’s deaf, I was just fingerspelling to him to get a refill.” I said.

“Yeah, I finally got that, but at first it was like you had just waved him back to where he came from without even speaking and he didn’t even speak back. It was like you telepathically said ‘go over there’ and he just did.”

“Heh. Jedi Mind Trick.” I said and went to reclaim my Hobbit.

I explained this all to him and he laughed while I waved my hand in front of his face. “Jedi Mind Trick,” I signed to him. He laughed again and again and again as he kept thinking of the adventure I just had.

My life is truly full of magic.