Letters to My Hobbit 16

Sam,

Today might have been the worst day I’ve ever experienced since your death a few months ago.  So what happened is the bank wants to reclaim your last SSDI checks that were deposited erroneously.  They want this money redeposited because the Government says he died. But guess what? The bank won’t deal with me at all until I can prove that you died. So the government will get that money from the bank because the bank believes your dead, but they won’t believe your dead for me unless I bring the death cert which I STILL DON”T HAVE BECAUSE CARNES FUNERAL HOME IS A ROYAL *&$#UP house. But that’s what happens when you have to deal with a county program. You get $#*!!y service and you have to be glad for it. It isn’t that I don’t want to pay them back. I was prepared to, but I can’t do it when they want it, in FIVE DAYS. And it’s brought up all these memories about you dying, dealing with the funeral home that never ever went well, ordering a DEATH CERTIFICATE that never came, and just everything that has to do with you DYING. I cried about an hour at work. Got paid 20.00 to do it though… so I guess there’s that. I cried off and on having to take calls, thinking about how this entire thing SUCKS and how nothing about this has gone right, though I still feel blessed to have spent the last 7 months of your life with you almost 24/7. I say “I love you” much more now than I ever did when you was alive, and I told you “I love you” a lot when you were alive. I guess I do love you even more now, I hope you love me more too, but this sucks. I really just want to feel like I can emotionally handle these things, and I just can’t. I want to get to that place where these things don’t make me cry all day and for an hour straight at work. I don’t want to forget you, I just want to get to a place where it’s okay to be frustrated without feeling like I’m being pushed under water again. You grok?

And… I dropped my phone in the toilet and it stopped working so I had to get an AT&T paygo phone because it’s a holiday weekend and I wouldn’t have got a new phone by MOnday.  I’m not sure the deductible is worth it anyway.  125 for that Nokia Lumina 925, which I don’t even really like anyway…  I might just get something else for the same money.

Anyway… After all of that I went to counseling and cried some more.  I think I’ve spent most of the day crying.  I will probably have a massive headache tomorrow.

I bought chocolate.

I love you.

Noelle

Conversations With The Hobbit: Part 1

My Hobbit: i just wonder if there’s more ‘science’ than we think in scripture
Me: well, I’m pretty sure that scriptures/prophets weren’t all that concerned with science. That’s like asking an astronomer what he thinks about rotating crops: you know? It’s really not fair to expect them to be an expert in both fields, especially when that option really wasn’t available to them. They knew about sheep. They could tell you how to breed a good ewe. That’s about all the science they knew, but for their time, that was pretty damned important and yet, people always expect prophets to know more about science than scientists know about faith (or sheep).

Prologue from Raging Bull

For those of you that helped me with this novella, there’s a sneak peak up at my artists/authors blog:

via Prologue from Raging Bull.

Feel free to repost and reblog!!!

Euthenasia for the deaf-blind

About the case of the deaf blind twins that had themselves put to death because they didn’t want to live with being both deaf and blind.  They were deaf and going blind at the time they decided that life just isn’t good enough if you can’t hear and see (and you thought AUDISM was bad? What do you call it when the deaf think it’s so horrible not to be able to SEE that you should just DIE?):

http://www.newser.com/story/160965/deaf-twins-going-blind-die-by-assisted-suicide.html

I wanted to tell you why this was an evil thing these brothers did.

My husband has Ushers Syndrome and has been deaf since he was six and living with a deteriorating vision for most of his life.  He still tells tales about ‘blind camp.’  That was when he could still actually see.  Now, we have a blog that chronicles our life together, the adventures of the deaf-blind and we try to focus on the positive: https://withclosedcaptions.wordpress.com.

There is no cure for Ushers Syndrome.  Sam is rapidly losing the little vision he has.  He is having a lot of problems accepting the fact–despite everything we tell him–that he still has value.  There is not a job he can do that is more valuable to us than working at home raising the kids, but he does other things for me, like help me edit my work and research, besides being my emotional recharge, my spiritual rock and my best friend.  Society doesn’t value a stay at home dad very much, and obviously, from the above story, it doesn’t even really value a deaf-blind person.

This double suicide didn’t just affect these two brothers.  No.  This affected my husband.  If the deaf people didn’t think they had a value if they went blind, how can anyone expect society to think they do?

Katherine Sebilius’ said “Some people live, some people die” as if there were no value to a life that didn’t fit in a box on a chart in some census file.  This is exactly the mindset that these deaf brothers understood.

Every time my husband goes through a bout of depression, we struggle to show him how much he means to us.  You know who we have to fight?  That influence from the government, the media, and now these two deafblind brothers who think being deaf and blind is too much to bear.  They even use the excuse that they don’t want to be a burden to their family.  What did their family say?  They waved goodbye and had a ‘rich conversation?’  Are you freaking kidding me??!!

F*** you for not fighting this tooth and nail so I and all of my friends who are deaf and might one day go blind didn’t have to fight it. Screw you for going down silently to that last sleep.  I hope those deafblind brothers spend as much time in hell as we spend struggling to keep my husband uplifted and positive. (even though I don’t really believe in “hell”)

You think these sorts of decisions don’t affect other people?  You think they only impact the disabled, or the chronically ill? Think again. It may cost me the best man I’ve ever known.  Friends and family say these two brothers were good men.  Take a look around you. Do you really think society can afford to lose a lot more good men?

As for me and my house…  We will fight tooth and nail to continue to support and uplift the sanctity of each life, no matter the disability.

The Valley Of The Sham – Guest Poem by My Hobbit

The Valley Of The Sham

I saw The Great and Secret Show
Lost in the Valley of the Damned
Got past the shame and saw the Sham
I loved the Demons, I loved the Whores
The Light of God shone through the Doors
Caught in a rabbit Trap I never made
My Soul transmuted beneath the shade
The Fire burns, it burns so well
I never knew your Heaven was my Hell.
+S

An Hour In The Life Of A Deaf Blind Man (guest post by the Hobbit)

An Hour In The Life Of A Deafblind Man

I wanted to do something sweet for my wife and stepkids, so I decided that I would get my wife a dozen yellow roses, and a couple of packs of candy valentine hearts for the kids.

I walk to the store, and on the way I realize that I don’t have a notepad and a magic marker with me, but I hope that it won’t be a problem.

I went to the bank near the store to withdraw money from the ATM. Unfortunately it is midday, and the sun is shining too brightly on the outdoor ATM for me to be able to use it.

So I go into the grocery store to see if they have an ATM. I ask one of the cashiers where the ATM machine is. He points me in the direction of the bathrooms, so I go over there only to discover there is no ATM. I go back to the cashier and pull out my ATM card and slide it back and forth. He points in a different direction, and I find the ATMs.

I can’t read the fonts on the grocery store ATM very well, so I sort of stab at the buttons until I can see ‘checking’ and enter the amount I want ($20). The machine shows another screen, probably asking me if I want to pay the transfer fee (which I wouldn’t have had to pay if I could see the bank’s ATM machine). I figure it’s 50/50 so I push one. The machine doesn’t give me a $20 and flashes a message that I can’t see.

I sigh with exasperation.

I go to look for the flowers anyway, figuring that I can use the ATMs at the cash register, which is kind of a pain because I can never read the LCD readouts that ask me if I want to use credit/debit do-you-want-cash-back, please-enter-your-pin, and the order isn’t always the same from store to store and I haven’t tried it here yet.

I find a dozen yellow roses and ask the cashier how much they are. She scans it, but I am unable to see what the price showing on the monitor is, so I ask her to tell me. She tells me, but I can’t hear her, so I tell her that I am both visually and hearing impaired, so can she write it down? She does, but it’s in pen, so I still can’t see it. At this point I feel like a terrible nuisance.

I am not completely sure exactly what my balance in my checking is, so I go *back* to the bank, only this time instead of using the bank’s ATM (because the sunlight is still glaring on it too much to see) I go inside the bank and wait in line. Once I get a bank teller, I ask her if she will tell me what my balance is, and I tell her that since I can’t hear, would she please write it down for me.

She writes it down in pen, but it is too small, so I apologetically ask her to write it larger so I can see. She writes it out, and I see that I actually did have enough in my checking account to be able to use the bank’s ATM as well as the grocery store’s ATM. I get enough money to buy flowers, and I head back to the store.

After I get the flowers, I remembered that I wanted to get the candy hearts for the kids. So I ask the cashier which aisle the candy hearts are on. She calls to someone else, who tells her, then she tells me, but I can’t hear her. So I ask her if she will show me with her fingers what aisle they are on, and she holds up a 1 on one hand, and a 3 on the other hand. I figure it’s aisle 13 (rather than 31) so I say “13, right?” She nods, and I thank her.

I go to look for the candy hearts, squinting hard at the aisle numbers, and after a few minutes of squinting at candy boxes, I find them. I can’t see the price for the candy hearts. Since I only have approximately $2 left, I grab two boxes hoping that I have enough money to cover it.

I go to another register to buy the candy hearts, but I wanted to be sure I had enough so I ask the lady if $2 will cover it. She says something, but doesn’t nod or shake her head, so I am unsure. She seems to be asking me for change, so I fish in my pocket for change and show her what I have, and ask her again “is that enough?” she hands me back a dollar and rings it up. Apparently I had given her too much, not too little, but I just couldn’t hear what she was saying.

Finally, I leave the store, flowers and candy in hand, and I decide I should probably call my wife to let her know why it is taking me so long. I can’t see the numbers on the phone very well, but I’ve dialed the number enough to be pretty sure that I am dialing the correct number. I wait until the screen changes so I can begin to talk, but I can’t hear whether my wife is on the phone or not. I speak into the phone telling her “I don’t know if you are getting this or not, but if you are I am on my way home now.”

Then I walk home, and give the flowers to my wife. I am grateful that I managed to bumble my way through it, and I can literally feel all of the tension from the pent-up deafblindie frustrations melt away as she hugs me.

— by Sam

Miracles – guest Post by my Hobbit

In ASL, the sign for miracle is “wonderful happening.” The ASL sign manages to be much less problematic than the English word.

So Jesus rose from the dead? That’s a wonderful happening. Jesus walked on the water? That’s a wonderful happening too. You just got a job? Wonderful happening. Your wife had a baby? Wonderful happening! Your cat had kittens? Well that’s wonderful too, but I’m not sure that’s actually a happening. You got a cochlear implant? Hmmm… well, that’s your choice.

Okay, I guess sometimes the concept is problematic even in ASL.

http://www.azlyrics.com/lyrics/icpinsaneclownposse/miracles.html

–by Sam Campbell, aka Noelle’s Hobbit 🙂

Blinded by the light

Him: speaking of which, I tried to use that other flashlight, but you took it back. so I need a decent flashlight like that one. Like the other one you gave me
Me:  Well … it is my flashlight.  I don’t remember giving you a flashlight at all.
Him: yes, well
Me:I didn’t know you needed one
Him: yeah I have asked a few times for one like the other one I have. I can just use that one and not bother trying to remember to take it in my bag.
Me: I didn’t know you had one.  But I will get you another one soon
Him: k
Me: It’s just that I don’t normally go to the store, pass by the flashlights and think “Oh yeah! The blind man needs a flashlight! You know… so he can see in the dark… or something…” But I’ll put it on my shopping list 😛