Euthenasia for the deaf-blind

About the case of the deaf blind twins that had themselves put to death because they didn’t want to live with being both deaf and blind.  They were deaf and going blind at the time they decided that life just isn’t good enough if you can’t hear and see (and you thought AUDISM was bad? What do you call it when the deaf think it’s so horrible not to be able to SEE that you should just DIE?):

I wanted to tell you why this was an evil thing these brothers did.

My husband has Ushers Syndrome and has been deaf since he was six and living with a deteriorating vision for most of his life.  He still tells tales about ‘blind camp.’  That was when he could still actually see.  Now, we have a blog that chronicles our life together, the adventures of the deaf-blind and we try to focus on the positive:

There is no cure for Ushers Syndrome.  Sam is rapidly losing the little vision he has.  He is having a lot of problems accepting the fact–despite everything we tell him–that he still has value.  There is not a job he can do that is more valuable to us than working at home raising the kids, but he does other things for me, like help me edit my work and research, besides being my emotional recharge, my spiritual rock and my best friend.  Society doesn’t value a stay at home dad very much, and obviously, from the above story, it doesn’t even really value a deaf-blind person.

This double suicide didn’t just affect these two brothers.  No.  This affected my husband.  If the deaf people didn’t think they had a value if they went blind, how can anyone expect society to think they do?

Katherine Sebilius’ said “Some people live, some people die” as if there were no value to a life that didn’t fit in a box on a chart in some census file.  This is exactly the mindset that these deaf brothers understood.

Every time my husband goes through a bout of depression, we struggle to show him how much he means to us.  You know who we have to fight?  That influence from the government, the media, and now these two deafblind brothers who think being deaf and blind is too much to bear.  They even use the excuse that they don’t want to be a burden to their family.  What did their family say?  They waved goodbye and had a ‘rich conversation?’  Are you freaking kidding me??!!

F*** you for not fighting this tooth and nail so I and all of my friends who are deaf and might one day go blind didn’t have to fight it. Screw you for going down silently to that last sleep.  I hope those deafblind brothers spend as much time in hell as we spend struggling to keep my husband uplifted and positive. (even though I don’t really believe in “hell”)

You think these sorts of decisions don’t affect other people?  You think they only impact the disabled, or the chronically ill? Think again. It may cost me the best man I’ve ever known.  Friends and family say these two brothers were good men.  Take a look around you. Do you really think society can afford to lose a lot more good men?

As for me and my house…  We will fight tooth and nail to continue to support and uplift the sanctity of each life, no matter the disability.

Tyrannical Compassion for the Disabled

These are the stories that horrify me–not because I am disabled, or because I fear I may be one day (which I well may be) but because my husband is and I love him so deeply that even Romeo and Juliet could not understand.  Besides, they were kids.  What does a kid know about love? Real love?  Love that endures past frustration when your husband can’t understand you because he’s deaf and love that endures past common sense when you realize him walking to the store means that you have to trust every person he walks past or that drives on the street before him, including him.  Can they see the angels that help him?  Did Romeo ever tell his best friend that Juliet was the best of all women and she would be even if she were a toothless old hag?  Did Juliet ever tell her nurse that Romeo would give his blood to gain his last gold coin to buy her a pair of pearl earrings if she had asked for them?  They hadn’t lived long enough to grow past passion and into the deepness.  Romeo didn’t have to see stretch marks, hear Juliet scream at the kids, or endure her crying during PMS and Juliet never was a NFL widow.

Did Juliet ever think “What happens to him when I am gone?”  What if Romeo fell down a shaft and becomes suddenly Stephen Hawking, without the fancy computer?  Does someone else decide his life is ‘valuable?’  Does someone pull a Michael Schaivo and end his care because they don’t think he would want to live doing nothing but thinking of how the universe is structured?

This is what I think of.

To people who want to die rather than ever live like Terry Schaivo, get a physicians directive.  Do not leave these things to other people and especially not the government.  Do not scare the rest of us, who happen to love the disabled people we live with, with the threat of interference by someone who doesn’t love them or by someone who is so compassionate, they want to kill them/you/us.

What if someone, with the tyranny of ‘compassion’ read old journal entries and decided that my husband was not happy living as he is, because I guarantee you they can find ‘evidence’ that he isn’t happy living as a deaf and blind person.  But if you looked at my old journal entries, you could find evidence that I never wanted to live with another man ever again.

Everyone is so compassionate nowadays.  They want to save you from being fat (see my blog on Michelle Obama and happy Fat Hobbits), or sick, or poor, or frustrated, or offended, or in an accident, when the truth is you can’t save anyone from any of these things – not unless you want to completely run their lives, from start to finish, in a bubble of your tyranny.  We don’t do it to zoo animals–why do we think it’s right for people?  How can you possibly prefer a free range chicken and desire a caged human?  We don’t know what’s in a chickens head, but we still ‘know’ it would rather be free.  If you starved a chicken to death, you would be subject to fines and law suits.  But in Florida, you can starve a woman to death and not even her family can stop you.

This is what scares me.

This is what I fight against.

I will just point out that *I* like kids with Downs, deafblind men and most women with CP and I am willing to pay extra in charity to help them.  I would rather you left the disabled alone completely than decide, in your compassionate tyranny, how they would prefer to live.  How about just accepting that I prefer them to live?

I fear the compassion that decides what is best for other people instead of letting them choose for themselves, even if they are wrong–or at the very least, erring on the side of life, the possibility that people LIKE to be alive. I won’t point out that Hitler started his eradication campaign with the disabled, or all the Eugenicists that were in American Universities that wanted you to “prove your value to society,”  how about you prove YOUR value to ME?  You cost me money, you tax me, you decide what I can and can’t have.  You don’t love me. You don’t improve my life and you don’t do windows or laundry.  You can’t even make me LAUGH.  Well that doesn’t work here.  Not in this house and by God, if there isn’t somewhere I can go where I can live the way I think is best, with or without laundry, I might even take Newt up on his Moon Colony.