Life in Color With Closed Captions

“How do you do it?”

There is a unusual level of dysfunction that my family lives with on a daily basis.  We all realize that this is not ‘normal’ for most people, not even most blind or deaf people and their family.  For us it has become ‘normal’ even if it is not comfortable.  The children are well adjusted to it, still able to communicate with their friends while communicating with their step-father in the best ways to be understood.  There are still miscommunications.  There are still problems that can’t be fixed with a light rope in the hall, clean hallways and regular oil changes.  Some things are still unbearably difficult, but somehow, we make it through.

Family and friends have been an invaluable resource as have charity, welfare and church.  They are all a regular part of our ‘normal’ life.  They all lift us up when we feel we are drowning.  And we try to be a blessing to all of them in return by serving and returning support.

It is a hard, long, difficult road, with many moments of sorrow and frustration, but just as many miracles and sufficient moments of joy.  Sometimes the joy seems fleeting and as hard as we try to hold onto it, it slips like sand through our fingers and we hit the next obstacle.  We struggle, and we endure.

Here is where we share the moments of joy, so we can look back and giggle, smile and remember.  There are many more moments of frustration ahead.  Sometimes we feel overwhelmed by it, and then a friend appears and we are, as CS Lewis said: Interrupted by Joy.  Thank you for being a part of it.

Born to Be Wild…

The Hobbit: *sigh* they are probably going to ban bath salts because of retards snorting them or whatnot.
Me: they’ll just make it a behind the counter purchase like your asthma pills
The Hobbit: Man on bath salts impersonates chicken, lands in jail : Knoxville News Sentinel: that’s some good shit, man! Makes you impersonate a chicken!
Me: lol
Me: born to be wild! Or at least free range…
The Hobbit: hahaha

Motivational speakers…

I can’t convince my husband, who is blind and deaf, that he COULD be a motivational speaker, and he has great experiences to share… Everyone always asks about ‘how did you meet’ and ‘how do you cope’ and on and on.  Why he’s not writing or speaking, I really can’t understand. He says he doesn’t like being an ‘inspiration’ to people, but heck!  We need money and he needs a career.  There’s one built into being an ‘inspiration’ to people, isn’t there?  It’s like a writer, but with a sob story everyone actually WANTS to hear.  Or at least be a comedian… right?

So… how do I convince him?

How are things going?

Friend (who shall remain nameless to protect their identity):  So, how are things?

Me: (shrug) Okay, I guess.

Friend: Has your husband had any more problems… burning down things or anything? (uneasy laugh, but obviously sincere in their concern for him)

Me: No more fires. Just flooded the washroom.