“How do you do it?”
There is a unusual level of dysfunction that my family lives with on a daily basis. We all realize that this is not ‘normal’ for most people, not even most blind or deaf people and their family. For us it has become ‘normal’ even if it is not comfortable. The children are well adjusted to it, still able to communicate with their friends while communicating with their step-father in the best ways to be understood. There are still miscommunications. There are still problems that can’t be fixed with a light rope in the hall, clean hallways and regular oil changes. Some things are still unbearably difficult, but somehow, we make it through.
Family and friends have been an invaluable resource as have charity, welfare and church. They are all a regular part of our ‘normal’ life. They all lift us up when we feel we are drowning. And we try to be a blessing to all of them in return by serving and returning support.
It is a hard, long, difficult road, with many moments of sorrow and frustration, but just as many miracles and sufficient moments of joy. Sometimes the joy seems fleeting and as hard as we try to hold onto it, it slips like sand through our fingers and we hit the next obstacle. We struggle, and we endure.
Here is where we share the moments of joy, so we can look back and giggle, smile and remember. There are many more moments of frustration ahead. Sometimes we feel overwhelmed by it, and then a friend appears and we are, as CS Lewis said: Interrupted by Joy. Thank you for being a part of it.